New research study on the lived experience of young people who have had glue ear from a young age and the views of their parents

What is it like to grow up with glue ear?

What is it like to be the parent of a child with glue ear that does not clear up within 12-18 months?

My name is Carmel Capewell and I’m working towards a PhD at the University of Northampton. My Director of Studies is Professor Richard Rose in the Centre of Education and Research.

There are two aspects to the project:

  1. Parents of children with glue ear who would want to join a support group to share their experiences, requirements and advice – Northampton, Milton Keynes, Leicester Involvement would be for parents of children of any age who have had a diagnosis of glue ear either recently or some time ago.
    The material would be used to inform other parents, teachers and medical professionals of the experiences, needs and strategies used for dealing with glue ear.
  2. Young people with ongoing glue ear from an early age, and at least one parent, to become involved in using photos and images which describe how glue ear effects their day-to-day life. They would describe the pictures in writing or by voice recording.

I am looking to recruit at least one parent, and young people aged 10-16 years who have:

  • had glue ear before the age of five years
  • had at least one set of grommets or tubes
  • glue ear episodes now
  • speak fluent English

The focus is on understanding individual’s experience and his/her personal perspective.

This project is a chance for young people and their parents to express their views about their experience of glue ear in their own terms.

All information would be anonymous and confidential.

For further details about the project and if you and your child are interested, in either part, please contact Carmel Capewell carmel.capewell@northampton.ac.uk 07756 231264

Source: Carmel Capewell, The University of Northampton